Tag: illness

Under Intense [Air] Pressure from Rollercoaster Isobars

Posted on by delphinemusic in aggitated, anguish, anxiety, autistic, badday, badthings, badweather, chronic illness, Chronic Pain, Chronic Paraesthesia, concerned, confused, CPTSD, crushingfeels, disaster, dismal, distressed, drained, exasperation, exhaustion, fatigue, feelsick, Fibromyalgia, Fibroplegia, frustration, healthcare, helplessness, Hemiplegic Migraine, imprisonedfeels, Isobars / Air-Pressure, long COVID, Mental Health, mentalhealth, miserable, overwhelmed, PTSD, ptsd, Ramblings, sad, sepsis, Stamina & Energy, storms, stress, stressed, suffocatingfeels, terrified, trauma, trauma, uncertainty, uncomfortable, upset, vibratingscared, waitingfordoom, weather, Weather/Isobars

Fibromyalgia has narrowed my world in a way that nothing else ever has... Then it also got itself a "friend" -- Long COVID. Long COVID then went and got SEVERELY Exacerbated by Five Months of Hellish BURNOUT because of the STUPID Hospital's Treatment (or amazing lack thereof) of Lolli. Said BurnOut has rendered me... Entirely Non-Functional. In about as bad a condition as I was when I was battling SEPSIS.... But Then... Along Comes The Big Fibro Nemesis... The GODDAMNED WEATHER -- And the Rollercoaster Isobars thaat cause PAIN & Paresthesia like No Other to me.

Surviving Trauma with ASD

Posted on by delphinemusic in Alexithymia, anxiety, ASD, Asperger, aspie, chaos, confused, despairing, dignity, disability, dragondisappointment, drained, exhaustion, fatigue, Fibromyalgia, Fibroplegia, frustration, Ramblings

My Story... My Life... The Second Time My World Imploded into PTSD... When I was 34, literally my entire world fell apart. I was so ill I couldn’t move and was in 24/7 agony from Fibromyalgia, and after 2 years of this illness and 10 years together, my partner snapped and she sent me home … Continue reading Surviving Trauma with ASD →

Anniversary of Hell…

Posted on by delphinemusic in ASD, chronic illness, disability, Fibromyalgia, hospital, Illness & Depression, Isolation, Mental Health, Ramblings, stress

Tomorrow is the anniversary of when I first was taken into hospital... On the 28th January 2018, I was booked into the Premier Inn at Skelmersdale, to go to my niece's christening the next day. I ended up in hospital for six weeks instead...

Anxiety & Chaos — The Antithesis of the Aspie Mind…

Posted on by delphinemusic in ASD, Asperger, chronic illness, disability, Fibromyalgia, Illness & Depression, Isolation, Mental Health, mobility problems, Ramblings

Anxiety and Chaos rules my mind. It feels like it's been long buried under mountains of agonising pain, sorrow, grief. Fibro-Fog, medication, and more and more Chaos and Anxiety. I can feel my mind still there, calling, struggling to be freed, to be heard... yet, there seems to be so little I can do about digging it back out.

All Pain, No Gain?

Posted on by delphinemusic in Asperger, chronic illness, Chronic Pain, Fibromyalgia, Illness & Depression, pain, Ramblings

It's easy to believe - too easy sometimes - that the actual entire universe is against you no mattter what you do. In fact, the more good you try and do, the more it punches you back in the face. Perhaps this is especially true if you're already struggling, and you just want that one … Continue reading All Pain, No Gain? →

Never-Ending Nightmare

Posted on by delphinemusic in Asperger, chronic illness, Chronic Pain, Fibromyalgia, Illness & Depression, Mental Health, pain, Ramblings

  I cannot even explain how exhausted I am. Meltdown after meltdown – horrific ones – just don't seem to ease, running into each other, causing complications that cause even more... It a nightmare that doesn't seem to end. Pain, confusion, exhaustion, [on top of my usual] fatigue, disorientation, pure terror. All apparently starting from … Continue reading Never-Ending Nightmare →

Freedom To Sense Senses

Posted on by delphinemusic in Asperger, chronic illness, Chronic Pain, Fibromyalgia, Illness & Depression, Mental Health, pain, Ramblings

These have recently become my new best friends...         *      *     *      The reason: The ability to now have better peripheral orientation and physical awareness. Part of me hopes they might also help tone my arms and legs... but I couldn't care less if they don't. With these, I know where my … Continue reading Freedom To Sense Senses →

Keep Sane… Keep Going…

Posted on by delphinemusic in Asperger, chronic illness, Chronic Pain, Fibromyalgia, Illness & Depression, Isolation, Mental Health, pain, Ramblings

I would have expected that after more than two and a half years I might be used to this by now... the pain, the exhaustion, the enormously excessive fatigue, the lack of mobility, lack of focus, lack of concentration, lack of my usual ability to fixate obsessively... but I am not. I find that I … Continue reading Keep Sane… Keep Going… →