Tag: disability

Under Intense [Air] Pressure from Rollercoaster Isobars

Posted on by delphinemusic in aggitated, anguish, anxiety, autistic, badday, badthings, badweather, chronic illness, Chronic Pain, Chronic Paraesthesia, concerned, confused, CPTSD, crushingfeels, disaster, dismal, distressed, drained, exasperation, exhaustion, fatigue, feelsick, Fibromyalgia, Fibroplegia, frustration, healthcare, helplessness, Hemiplegic Migraine, imprisonedfeels, Isobars / Air-Pressure, long COVID, Mental Health, mentalhealth, miserable, overwhelmed, PTSD, ptsd, Ramblings, sad, sepsis, Stamina & Energy, storms, stress, stressed, suffocatingfeels, terrified, trauma, trauma, uncertainty, uncomfortable, upset, vibratingscared, waitingfordoom, weather, Weather/Isobars

Fibromyalgia has narrowed my world in a way that nothing else ever has... Then it also got itself a "friend" -- Long COVID. Long COVID then went and got SEVERELY Exacerbated by Five Months of Hellish BURNOUT because of the STUPID Hospital's Treatment (or amazing lack thereof) of Lolli. Said BurnOut has rendered me... Entirely Non-Functional. In about as bad a condition as I was when I was battling SEPSIS.... But Then... Along Comes The Big Fibro Nemesis... The GODDAMNED WEATHER -- And the Rollercoaster Isobars thaat cause PAIN & Paresthesia like No Other to me.

Fibro Bunny

Posted on by delphinemusic in anxiety, autistic, blackouts, CFS/ME, chronic illness, Chronic Pain, Chronic Paraesthesia, crushingfeels, despairing, disability, disassociation, distressed, exasperation, exhaustion, fatigue, Fibromyalgia, Fibroplegia, frustration, healthcare, helplessness, Illness & Depression, imprisonedfeels, inhell, Isobars / Air-Pressure, long COVID, Mental Health, mentalhealth, miserable, numbness, onedge, overwhelmed, pain, PTSD, ptsd, sad, Stamina & Energy, stress, stressed, suffocatingfeels, uncertainty, uncomfortable, upset, vibratingscared, weather, Weather/Isobars

This... SUPER DRAINED EXHAUSTION is Getting Seriously, Severely Out Of Hand. There's the Paresthesia Nightmare of PAIN. The Undiagnosed Long COVID that's making it impossible to even move. ... Seriously, I Just Don't Know how else to word this DEEP ... Empty & VOID inside of... Ability To Move Or Even Breathe without The Most Enormous Effort... Wasn't there before I got COVID and now it's just getting worse with each day and month that goes by...

Enduring The Days… The Relentless, Endless Days

Posted on by delphinemusic in aggitated, Agony, badday, badthings, badweather, blackouts, chronic illness, Chronic Pain, Chronic Paraesthesia, despairing, disability, disaster, dismal, distressed, drained, exhaustion, fatigue, Fibromyalgia, Fibroplegia, Illness & Depression, pain, painsomnia, weather, Weather/Isobars

Unable to eat, my Fibro FlareUp is SUPERNOVA… Enough that I keep Blacking Out from the PAIN… AFTER A HORRIBLE, TORTUOUS NIGHT & MORNING OF PANIC ATTACKS….. I now find out the Lead on my charging box by bed has failed. The USB plus directly in the baby plug TOWER isn’t working. Can’t get at … Continue reading Enduring The Days… The Relentless, Endless Days →

Nemesis: Weather Vs Fibromyalgia

Posted on by delphinemusic in aggitated, Agony, anguish, anxiety, autistic, badday, badthings, badweather, blackouts, chronic illness, Chronic Pain, Chronic Paraesthesia, despairing, disability, exhaustion, fatigue, Fibromyalgia, Fibroplegia, Illness & Depression, pain, weather, Weather/Isobars

Spoiler Alert:WEATHER WINS. EVERY. tIMe. March 2023 -- And Storm Larissa has hit us over here [from France, apparently] like a sledgehammer to the head. Fibromyalgia, Chronic illness, Chronic Pain... All Bring Agony & Paresthesia through my door, into my Body & Brain & Life Sudo Existence. It all crashes down onto me... Drowning Me... … Continue reading Nemesis: Weather Vs Fibromyalgia →

Running Through Custard & Quicksand

Posted on by delphinemusic in aggitated, anxiety, ASD, asd, autistic, badweather, blackouts, chronic illness, Chronic Pain, Chronic Paraesthesia, drained, exhaustion, fatigue, Fibromyalgia, Fibroplegia, headache, healthcare, helplessness, hypervigilance, imprisonedfeels, infection, Isobars / Air-Pressure, Mental Health, miserable, morphine, nausea, numbness, overwhelmed, pain, painsomnia, Ramblings, spasms, stress, Treatments, weather, Weather/Isobars

I'm absolutely WRECKED... Feeling like I've been hit by a runaway BULLET Train, run over by a tank, then forcibly wrapped inside a boa-constrictor that has SEVERELY ELECTROCUTING giant hedgehog spikes, IMPALING Me EVERYWHERE, with NON-STOP Electrocuting Currents.... And With Each Individual Cell having its very OWN TENS Machine Attached -- on "MEGA SUPERNOVA...(!!!!!!)" Power...

FREAKING FRACKING FINALLY… HAPPY. NEW. YEAR!!

Posted on by delphinemusic in anniversary, Ramblings

HAPPY NEW YEAR!

SEPSIS Poster Outlining Symptoms of SEPSIS from The UK Sepsis Trust

So, Apparently A&E Can’t Tell That Someone Who’s Screaming In Pain & Vomiting Continuously… IS. SERIOUSLY. ILL.

Posted on by delphinemusic in Agony, angry, anguish, anxiety, ASD, autistic, badthings, chaos, chronic illness, Chronic Pain, concerned, confused, CPTSD, crushingfeels, despairing, devestated, dignity, disability, disaster, distressed, disturbed, dragondisappointment, drained, drowningfeels, fatigue, Fibromyalgia, frustration, furious, healthcare, helplessness, hospital, Illness & Depression, imprisonedfeels, independence, infection, inhell, Mental Health, mentalhealth, miserable, nausea, overwhelmed, pain, PTSD, ptsd, sensoryoverload, sepsis, spasms, stress, stressed, suffocatingfeels, terrified, tmi, trauma, trauma, uncertainty, upset, vibratingscared, waitingfordoom

Hospital A&E COMPLETELY Ignored the Screaming Pain &; Continuous Vomiting from one Patient in the Waiting Room - A Vulnerable Adult, with Complex Medical Conditions, with Physical & Learning Disabilities, severe back and spine complications, and Mobility Problems. We were there because the GP had been concerned enough to allow a house-call. Said GP had been SO Concerned about The Patient, she immediately took One Look at them and said in No Uncertain Terms - You Need To Get To The Hospital!

Just…. WRECKED…

Posted on by delphinemusic in autistic, badday, badthings, badweather, catheter, chaos, chronic illness, Chronic Pain, Chronic Paraesthesia, confused, crushingfeels, despairing, disability, disaster, dismal, distressed, drained, exasperation, exhaustion, fatigue, Fibromyalgia, Fibroplegia, frustration, healthcare, helplessness, Mental Health, mentalhealth, miserable, onedge, pain, painsomnia, Stamina & Energy, stress, stressed, suprapubic catheter, upset

It's Nearly 4:30pm... and only NOW do I feel like I'm even STARTING to feel like MAYBE I can manage to do something. Like, Get Out Of Bed. Try to Play a Game. I wanted to get up by 12-to-1pm -ish to try and play the end bit of Mass Effect 1 [Legendary] for the … Continue reading Just…. WRECKED… →