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July 07, 2019 2:36 am

North Wales | 11°C

 

I’ve just seen the date at the top of this iPad a moment ago…

It’s 7/7 — the day things changed forever…

7th July 2015

14 Years Ago Today

And it will never “Just”… “Grow Old”… We were there. In the middle of it. SN was outside a few hundred yards away from That Freaking, Frikkin Bus… Maybe not half an hour after it blew itself up…

We watched it all as it unfurled itself on the news. Heard those Ambulances’ sirens dull on the TV as they raced further away from the scene… Only to get louder and louder outside my window on the way to the Trauma Centre in the Royal Free, Hampstead. It made it a chilling reality

The worst thing, however, was the fact that SN was inadvertently out there when the Tavistock Square Busexploded. The bomb had not long gone off, maybe only an hour or even half an hour. Entirely naïve of the situation, she had gone to meet her parents coming in to Euston from North Wales to see her graduation recital at Arts Ed.

If she had gone sooner, as she says, she decided to go take the mail upstairs to our apartment (Oakley Square, Mornington Crescent, Camden)  instead of leaving right away, she might have been there when the bomb exploded… Heard It… Saw It… Hopefully nowhere near the circumference of the shrapnel trajectory…

As she also pointed out, we would walk past there to get to town. If she hadn’t been having her Recital that day, who knows where we would have been. There’s a place close by we liked to have breakfast in, I’m certain. We could have been going there, done that… It all doesn’t bear to be thinking about… 😖😢😞

But SN was in Euston a little later, thank goodness… She says there was an air of something … wrong… there… But no clear indications — perhaps a fire down in the Tube line? That it wasn’t until I called her, she didn’t know anything had happened.

For me, it had been a very long nightmareto get hold of her. Phone networks were already being jammed (the cell phone networks in 2005 were still really in their infancy stage compared to now…), and I could not get hold of her. For ages… Minutes and Minutes… Which is forever when your best friend might be in serious danger…

I had known nothing was wrong until C (my sister) emailed me to ask how I was, if I was OK. I obviously told her I was fine and at home. And asked why she was asking. She told me to turn on the TV. Any. Channel

With that, my blood went cold and turned on the BBC… The first thing I saw was the fully exploded, destroyed and ripped out backend of the No. 30 Bus in… Tavistock SquareWhich was… Right. By. Euston. Station…. 😱😟😟😟😣😣😣😣😣😣🤯🤯🤯🤯🤯🤯😖😖😖😖😖😖

So, I flipped and started ringing her frantically, until I finally got an answer. And I nearly wept outright with overwhelming internal relief.

She came home — walking bravely despite all the horrors going on…

Her parents had been Evacuated back home from Watford Junction Station anyhow, and all Central London was in a serious Lockdown.

From then on… Well… It just go worse and worse. We were glued to the TV to get as much information as possible about it all. It. Was . Fucking. Terrifying

SN got quite serious PTSD from it… After all, she was thereThat is one seriously Majorheadfuck…

She seems to know how to deal with it well… She has a really, really powerful internal Strength of Will, and bears such a burden with dignity and Strength, despite the Fear and heartbreaking anxiety anything that triggers or reminds her of it… She still carries it with great Power and Grace, in my eyes. 

Not many people understand this. Her parents were kinda there — after all, they themselves were evacuated from London on the train, not being able to get hold of SN and know if she was OK. Not sure if they ever did grasp the reality she was near enough to have been kinda involved in it, too, if she’d have gone any earlier, though….

So, every 7/7 we talk about it. Discuss it. Get our Trauma and Anxieties out to someone who can commiserate and empathise truly. We went through that together. We still go through it together.

The date brings things to the fore too easily, the memories still vivid despite pretty much an entire Decade-and-a-Half having come and gone hence…

It. Just. Hurts…

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April 2019 — Dailyo Mood Chart Stats

I use this great diary & mood-tracking app… It was quite a good idea, actually, to help me with my ASD 🤔

https://www.daylio.net

Well, I’d probably say the graph says it all, how my last month went. Seeing it like this, though, is a bit of an eye opener. It’s really no wonder I am a mess, of this kind of emotional chaos is what I am living with… I think this was what I wanted and expected out of using Dailyo — but it’s rather different when it ’s actually there, right in front of you.


The only shame is you can’t sync it through different devices… that part is annoying, but the rest of if it is pretty great, actually… 🤔🤨😎


It’s disturbing how all-over-the-place the peaks are. It’s there, in front of you, undeniable. It wasn’t OK. It was Chaos, Brutal, Upsetting, Difficult, Emotionally Unstable… Destructively Unstable… I realise now how strong, stubborn, I’ve had to be, in the wake of that chaos… The reason I am so, so very Exhausted. Run-Down. Severely Hyper-Vigilant & Easily Startled. Anxious As Hell 24/7.

The last thing someone who craves… Needs… emotional stability, is this… I am ASD, with (probable) Alexithalmya. What I need is is for that to be solid in Green.

Green means Neutral. Not Happy. Not Sad. Not Scared. Not Angry. Not Anxious. Neutral. What I’m seeing is, quite frankly, the exact bloody Opposite!


I am aware there is no ideal, per-se… However, it cannot be too much to ask that it remain at least somewhat in the Green/Neutral area a little more than twice in one month…?!




The One With The Near-Meltdown, Dragon of Disappointment, and Too Many Feels…

Weather | 11°C


Complicated. So Much… Too Much… Feels… Too Many.

… All over the place


I don’t know what to do with them. They’re scary and confusing. I can’t even make sense out of, or even try to unravel, them…!


Nightmare day before it even starts. Managing to get to sleep (as in longer than 2 hour naps), on occasion, now, but dreams still come. Disturbing, or weird, or… unnerving ones. When Mam comes to wake me up, sometimes it’s a little bouncy for my sensibilities, and this was one of those times, unfortunately. I felt rather… rattled — but this is actually quite unusual for me. I don’t think I’ve reacted this badly for a while. I didn’t really do anything about it; I explained it to Mam — or tried to, at least. I don’t think I made much sense. This day was already off to a bad and complicated, confusing start.

Then the dogs were screeching everywhere, and no one downstairs was stopping the goddamned Wackadoos. Once again, I talked to Mam about it. But she got upset, and it all rather went south from there.

Mam came up, and when I tried to talk to her (apparently “in the wrong way”… 😕🤔😞 Which, for me, is unfortunately more common than I’d ever appreciate… 🤨😒), she started getting even worse with the defensive, the frustrations, and the squeaky “up tones”… which always makes me upended and upset, off any even-keel, and unable to cope. Adding that to the state I was already in before, and how I felt after this morning, and it was a nightmare waiting to happen inside my brain.

This escalated into a Meltdown Situation — just about managing to stay on the right side of sane(ish). One which I kept precariously balanced on the knife-edge of Full Blown Nuclear Volcano Meltdown, all furiously bubbling away inside me. It felt like a six-tonne boulder, that I could barely keep holding above my head. One that was threatening to fall onto my head. I was actually physically shaking from trying to keep it in check… It was agonisingly painful, both physically and emotionally/psychologically. I managed, sort-of. It stayed out of Meltdown Mode, remaining in the pending tray instead. Keeping a grip on it, keeping it up off me. I still don’t know how I succeeded.


To make matters worse, my friend S (kindly, compassionately, clearly, and “safely” … this girl should get a Bomb-Disposal medal for executing this so perfectly…!) informed me she had accidentally opened up an Amazon package that had been holding my precious birthday present — The SSD for my PC C-Drive upgrade, which has been put to one side, untouched and unopened, until such time I am ready to be able to upgrade said computer system.

… Now, I realise it should already have been done — going to Caernarfon was a big mistake, and I should have stayed home to do up my Baby. Now, he’s buried behind random stuff and mess, and I can’t get at him, to open him up and change the drives. Not only that, but because of what happened there on that “break” away, and how I am subsequently feeling because of it, I’m also in no psychological place to safely make the “brain transfer” that my Baby needs, between my original 120GB and the new 256GB SSDs.

Technically, that sanctity of that Gift has now been sacrificed after this mistake, and the packaging of the parcel is an opened mess… No More “Untouched and Unopened”… None of that for me now, for my Birthday Present from S… 🥺😫🤯😓😥 My First Birthday Present from S, with her being here with me. But, instead of being shocked or frightened by it, I am soothed and supported into hearing it and comforted whilst processing it.

This is my Friend, S

This might be the first time that something usually so… catastrophic… does not go off and explode like an IED in my head. I’m upset. I’m horrified. I’m Hugely under the shadow of the Dragon of Disappointment. It smacks me hard, and it’s pretty awful that this happened. However, as I explained, it brought the Dragon of Disappointment, yet gave it nowhere to land. There was no Valley of Terror, Panic, Shock, Trauma, etc, for it to land in. So, he’s kinda flying around there, half-heartedly, until such time he gets bored and buggers off again. And I am free to just ignore him, because — although he’s there — he’s not really doing anything, nor (more importantlyDestroying anything.

Finally… Somebody gets it — Nailed it. The fact niggles, but it’s more like a bored and petulant huff in the background that you can’t really take very seriously. I’ll take it.


#anxiety #helplessness #frustration #ptsd #trauma #despairing #dragondisappointment #alexithymia #exhaustion #pain #depression #asd #lost #fibromyalgia #paraesthesia #drowningfeelsPowered by Journey Diary.


“You Don’t Know What Damage You’ve Done…”

There Should Be No Shame…

But… There. Is. 

So. Much. Shame.

I can’t work. I can’t breathe. I cannot seem to stop it running around in my headDepression, Panic, Hopelessness, Despair… All claiming me. Claiming my attention. I cannot relax. I can’t even take a deep breath — both literally and figuratively.

This idea has burned up my brainShaking, Shaken, Shame, Horror, Sickened Disappointment, all running rampant, until now I can barely move, I’m so frightened.

I read today on Twitter one single Tweet that stuck in my mind, saying:

 
If you’re living with this illness and functioning at all it’s something to be proud of, not ashamed of.
 

Carrie Fisher

This is what she has taken away from me. That physiotherapist.

Every Hacker, even every kind of Fighter, knows it takes one tiny flaw, one minuscule hole or weakness in the armour, and you can wriggle in and destroy what you’re going after. My armour was nowhere near strong enough to take this. It was new, vulnerable, still setting in its place. I am not sure if I ever even had a glimmer of a chance to survive such an onslaught of horrific demons and emotions from that one simple curse laid upon me.

My mind feels… Dead. Hopeless.

I’ve been trying to play Skyrim. No avail. Between my head’s cacophony of daemons, and the dogs’ constant barking (which dad ignores until I yell at him over text to fix), I’m in Emotional Hell. With Alexithymia and ASD. Meaning, I got no way in all hell’s universes of getting through this or managing this alone.

The constant barking screams it all home — if I was OK, if I wasn’t trapped here, if my legs workedthey wouldn’t be barking. I’d be there, telling them what to do until they figured out it wasn’t in their best interests not to make a peep. Dogs hate lectures. A lot. They love huggles and praises. So, it works like a charm to lecture their ears off, and they really think hard before doing it again. (Go on try it…!)

QueueHatred, Resentment, and Breaking Inside Till I Shatter & Die. Because I am not a good Mother. I am not a Good “Dog Owner” (hate the term). I am letting my babies down by not being there enough for them. All of this right now, once again, just Feels Wrong.

Not “OK”, like it did before. Like I fought so hard to feel. No. The horror inside I endured for nearly 5 years is back again, and doesn’t seem to anything but cruelly relentless and suffocatingly strong.

 
Utter Shame. Overwhelming Resentment. Clawing & Churning Despair Inside. Extreme Self-Hatred. Suffocating Feelings of Pointless & Being Troublesome. Disturbing Thoughts of Death.
 

I got them all to go away. I chased them out… But they apparently only got as far as a holding pen outside of my consciousness. And a fickle one at that. Now Queue Dragon of Disappointment to come and join in, and sit on my head again. All having a party in my brain, destroying it like it is a hotel room and it’s the band’s last night.

I’m trapped inside it, being tormented by it all. Imprisoned in my head, as well as everywhere else.

I’ve done this. I’ve done this before, and I’ve gotten away. I’ve done this before… so, so many times

… So, why do I have to go it again…?

#depression #quote #drowningfeels #suffocatingfeels #trauma #ptsd #imprisonedfeels #fibroplegia #lost #fibromyalgia #dragondisappointment #despairing

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