Tag: disabled

Under Intense [Air] Pressure from Rollercoaster Isobars

Posted on by delphinemusic in aggitated, anguish, anxiety, autistic, badday, badthings, badweather, chronic illness, Chronic Pain, Chronic Paraesthesia, concerned, confused, CPTSD, crushingfeels, disaster, dismal, distressed, drained, exasperation, exhaustion, fatigue, feelsick, Fibromyalgia, Fibroplegia, frustration, healthcare, helplessness, Hemiplegic Migraine, imprisonedfeels, Isobars / Air-Pressure, long COVID, Mental Health, mentalhealth, miserable, overwhelmed, PTSD, ptsd, Ramblings, sad, sepsis, Stamina & Energy, storms, stress, stressed, suffocatingfeels, terrified, trauma, trauma, uncertainty, uncomfortable, upset, vibratingscared, waitingfordoom, weather, Weather/Isobars

Fibromyalgia has narrowed my world in a way that nothing else ever has... Then it also got itself a "friend" -- Long COVID. Long COVID then went and got SEVERELY Exacerbated by Five Months of Hellish BURNOUT because of the STUPID Hospital's Treatment (or amazing lack thereof) of Lolli. Said BurnOut has rendered me... Entirely Non-Functional. In about as bad a condition as I was when I was battling SEPSIS.... But Then... Along Comes The Big Fibro Nemesis... The GODDAMNED WEATHER -- And the Rollercoaster Isobars thaat cause PAIN & Paresthesia like No Other to me.

FREAKING FRACKING FINALLY… HAPPY. NEW. YEAR!!

Posted on by delphinemusic in anniversary, Ramblings

HAPPY NEW YEAR!

SEPSIS Poster Outlining Symptoms of SEPSIS from The UK Sepsis Trust

So, Apparently A&E Can’t Tell That Someone Who’s Screaming In Pain & Vomiting Continuously… IS. SERIOUSLY. ILL.

Posted on by delphinemusic in Agony, angry, anguish, anxiety, ASD, autistic, badthings, chaos, chronic illness, Chronic Pain, concerned, confused, CPTSD, crushingfeels, despairing, devestated, dignity, disability, disaster, distressed, disturbed, dragondisappointment, drained, drowningfeels, fatigue, Fibromyalgia, frustration, furious, healthcare, helplessness, hospital, Illness & Depression, imprisonedfeels, independence, infection, inhell, Mental Health, mentalhealth, miserable, nausea, overwhelmed, pain, PTSD, ptsd, sensoryoverload, sepsis, spasms, stress, stressed, suffocatingfeels, terrified, tmi, trauma, trauma, uncertainty, upset, vibratingscared, waitingfordoom

Hospital A&E COMPLETELY Ignored the Screaming Pain &; Continuous Vomiting from one Patient in the Waiting Room - A Vulnerable Adult, with Complex Medical Conditions, with Physical & Learning Disabilities, severe back and spine complications, and Mobility Problems. We were there because the GP had been concerned enough to allow a house-call. Said GP had been SO Concerned about The Patient, she immediately took One Look at them and said in No Uncertain Terms - You Need To Get To The Hospital!

Where Did I Go…?

Posted on by delphinemusic in Alexithymia, anxiety, ASD, asd, Asperger, aspie, autistic, badthings, bpd, chaos, chronic illness, Chronic Pain, concerned, confused, CPTSD, crushingfeels, despairing, devestated, dignity, disability, disassociation, disaster, dismal, distressed, disturbed, drained, drowningfeels, exasperation, exhaustion, fatigue, Fibromyalgia, Fibroplegia, frustration, grief, healthcare, helplessness, hypervigilance, Illness & Depression, imprisonedfeels, independence, lost, Mental Health, mentalhealth, miserable, mixedfeels, personalinsights, Ramblings, selfawareness, selfcare, shower, showerchair, Stamina & Energy, stressed, trauma, uncertainty, uncomfortable, upset

Singer. Songwriter. Dancer. Horse Rider. Yoga Prac,titioner. Healthcare Worker. Data Analyst. Trauma Survivor. I wasn't always like this. It slammed itself into my face, destroyed my life, dessimated the person I once was,and annihilated my body. I went from a fully-formed Adult into a barely-there Zombie... with a body held together by nothing but Pregabalin, … Continue reading Where Did I Go…? →

Coming & Going…

Posted on by delphinemusic in aggitated, Alexithymia, anguish, anxiety, ASD, asd, Asperger, chaos, chronic illness, Chronic Pain, Chronic Paraesthesia, CPTSD, disability, distressed, exasperation, exhaustion, fatigue, Fibromyalgia, Fibroplegia, grief, helplessness, hospital, Illness & Depression, independence, irritated, medication, Mental Health, miserable, mobility problems, morphine, Outings, overwhelmed, packing, pain, premierinn, PTSD, ptsd, stress, stressed, Wheelchair & Mobility Accessories

...ONE Night to a Premier Inn... For a Hospital appointment for L. I mean -- It Should Have Been Simple... Right??

Death of Dignity

Posted on by delphinemusic in anxiety, badthings, chronic illness, Chronic Pain, Chronic Paraesthesia, confused, CPTSD, crushingfeels, despairing, devestated, dignity, disability, disaster, dismal, distressed, disturbed, drained, drowningfeels, exasperation, exhaustion, fatigue, feelsick, Fibromyalgia, Fibroplegia, grief, helplessness, Illness & Depression, imprisonedfeels, Isobars / Air-Pressure, Mental Health, mobility problems, onedge, overwhelmed, pain, PTSD, ptsd, Resentment, sad, scared, sensoryoverload, stress, stressed, terrified, trauma, trauma, uncertainty, uncomfortable, upset, vibratingscared, waitingfordoom, weather, Weather/Isobars

There is Zero Dignity. And apparently No Way of Getting It Back. Disabled may as well be Another Word for Degraded & Desolate... I HATE It...

Wheelchair Autie Vs Ticket Office

Posted on by delphinemusic in disability, frustration, Public Transport, Ramblings, Trains, Wheelchair & Mobility Accessories

You know, it's bad enough being a Wheelchair User when it comes to Public Transport. Adding my Fretful, Vexing, Social-Phobic Aspie Brain to that, means that it never goes well when it comes to using them. Now, I am glad to say, in hindsight, that this was the only thing that went wrong with this … Continue reading Wheelchair Autie Vs Ticket Office →