Category: mobility problems

The Nightmare of Nightmares, Hemiplegia & Grinding Teeth

Posted on by delphinemusic in aggitated, Agony, anguish, anxiety, ASD, asd, autistic, badthings, badweather, chaos, chronic illness, Chronic Pain, Chronic Paraesthesia, concerned, confused, crushingfeels, disability, dismal, distressed, disturbed, drained, drowningfeels, exhaustion, fatigue, Fibromyalgia, Fibroplegia, headache, healthcare, helplessness, Hemiplegia Attack, Hemiplegic Migraine, Illness & Depression, imprisonedfeels, Isobars / Air-Pressure, mobility problems, morphine, overwhelmed, pain, painkillers, painsomnia, Ramblings, sensoryoverload, spasms, stress, stressed, tmi, uncomfortable, upset, weather, Weather/Isobars

[So] after Suffering Awful Nightmares through the night, I've then been Grinding my Teeth SO HARD, meaning that now -- the Right Side of my Jaw is ABSOLUTLY KILLING ME... I think it's entirely DISTRUPTED the Neuropathy in there -- So It UTTERLY, OVERWHELMINGLY, DEVESTATINGLY HURTS It's AGONY... ... I'm also starting to Get Concerned & wonder if those Nerves are being DAMAGED IRREPRABLY from it happening REALLY FREQUENTLY again...  I was SO Exhausted last night, I Wiped OUT at 12:30am -- This was after Three Days Straight of Zero Sleep Throughout The Entire Night. That's what you get when Weird-Ass Weather, Stress & High Anxiety (especially the weather at this point) comes & Kicks You All The Way Down The Huge Mountain of Horrible You Are On... Otherwise Known As A Fibro-FlareUp & The Consequences Thereof.

No Shower Hair Washing

Posted on by delphinemusic in chronic illness, Chronic Pain, Chronic Paraesthesia, disability, drained, Enabling Accessibility Tools, exhaustion, fatigue, Fibromyalgia, Fibroplegia, Hair, hair dye, Hair Washing, healthcare, helplessness, Illness & Depression, independence, mobility problems, shower, Stamina & Energy, Wheelchair & Mobility Accessories

...Using it is pretty much a no-brainer, if you've ever washed your hair (or another's). Put it on, follow the instructions on how their product works best. Then, when you've finished... Just take off the Cap and Discard it [in the bin]. Dry and style [or neither] as you prefer -- you're Done(!). Otherwise, put on a Leave-In/No Rinse Conditioner afterwards...

HOW Do You Fit In Other Things When You’re Busy Being Ill…?

Posted on by delphinemusic in aggitated, Alexithymia, angry, anguish, ASD, asd, Asperger, aspie, autistic, badday, badthings, caredfor, chronic illness, Chronic Pain, concerned, confused, CPTSD, crushingfeels, despairing, devestated, dignity, disability, disaster, dismal, distressed, drowningfeels, exasperation, exhaustion, fatigue, Fibromyalgia, frustration, healthcare, helplessness, hypervigilance, Illness & Depression, imprisonedfeels, independence, inhell, irritated, lost, miserable, mobility problems, onedge, overwhelmed, ptsd, Resentment, selfawareness, selfcare, sensoryoverload, tmi, trauma, trauma, uncertainty, upset

Being Chronically Ill is, basically, not only having the Worst Paid Job EVER…But being stuck with it as — and as literally it gets — a life-long career, with Zero Ability of Getting Out…

Progress… ish…

Posted on by delphinemusic in Agony, aspie, autistic, chronic illness, Chronic Pain, Chronic Paraesthesia, crushingfeels, disability, Fibromyalgia, Fibroplegia, helplessness, Illness & Depression, Mental Health, mentalhealth, mobility problems, morphine, oramorphexperiment, pain, painkillers, painsomnia, panic, stress, Treatments

...I’ve been on The Extra Zomorph Two Weeks now — and I’ve Required Not One Extra Oramorph in that entire time. It’s Quite Unbelievable — This Is The First Time Ever My Pain Has Been Controlled Without Taking [specifically] Oramorph… (whoa…!!)

Coming & Going…

Posted on by delphinemusic in aggitated, Alexithymia, anguish, anxiety, ASD, asd, Asperger, chaos, chronic illness, Chronic Pain, Chronic Paraesthesia, CPTSD, disability, distressed, exasperation, exhaustion, fatigue, Fibromyalgia, Fibroplegia, grief, helplessness, hospital, Illness & Depression, independence, irritated, medication, Mental Health, miserable, mobility problems, morphine, Outings, overwhelmed, packing, pain, premierinn, PTSD, ptsd, stress, stressed, Wheelchair & Mobility Accessories

...ONE Night to a Premier Inn... For a Hospital appointment for L. I mean -- It Should Have Been Simple... Right??

Death of Dignity

Posted on by delphinemusic in anxiety, badthings, chronic illness, Chronic Pain, Chronic Paraesthesia, confused, CPTSD, crushingfeels, despairing, devestated, dignity, disability, disaster, dismal, distressed, disturbed, drained, drowningfeels, exasperation, exhaustion, fatigue, feelsick, Fibromyalgia, Fibroplegia, grief, helplessness, Illness & Depression, imprisonedfeels, Isobars / Air-Pressure, Mental Health, mobility problems, onedge, overwhelmed, pain, PTSD, ptsd, Resentment, sad, scared, sensoryoverload, stress, stressed, terrified, trauma, trauma, uncertainty, uncomfortable, upset, vibratingscared, waitingfordoom, weather, Weather/Isobars

There is Zero Dignity. And apparently No Way of Getting It Back. Disabled may as well be Another Word for Degraded & Desolate... I HATE It...

“Care & Repair” Needs To Change It’s Name…

Posted on by delphinemusic in accessiblebathroom, disability, Fibromyalgia, Fibroplegia, frustration, furious, mobility problems, shower, showerchair

I went in the shower with a pile of hair slathered in hair dye gel all wrapped up in a makeshift shower cap (aka a plastic shopping bag from the local chippy - Recycling with class[!]). The "cap" was removed. I prepared myself to transfer into the shower from Kushtie, grabbing the two handles on each side of the shower chair. Like Always. Every Single Time I Use It. So. Naturally I Never Expected It To Try And Injure/Kill Me...!!

“You Don’t Know What Damage You’ve Done…”

Posted on by delphinemusic in Alexithymia, ASD, Asperger, chronic illness, Chronic Pain, despairing, disability, drowningfeels, Fibromyalgia, Fibroplegia, Illness & Depression, Isolation, lost, Mental Health, mobility problems, PTSD, ptsd, Quotes, stress, suffocatingfeels, trauma, trauma

There Should Be No Shame... But... There. Is.  So. Much. Shame. I can’t work. I can’t breathe. I cannot seem to stop it running around in my head. Depression, Panic, Hopelessness, Despair... All claiming me. Claiming my attention. I cannot relax. I can’t even take a deep breath — both literally and figuratively. This idea has burned up my brain. Shaking, Shaken, Shame, Horror, Sickened … Continue reading “You Don’t Know What Damage You’ve Done…” →