Tag: Hemiplegic Migraine

The Nightmare of Nightmares, Hemiplegia & Grinding Teeth

Posted on by delphinemusic in aggitated, Agony, anguish, anxiety, ASD, asd, autistic, badthings, badweather, chaos, chronic illness, Chronic Pain, Chronic Paraesthesia, concerned, confused, crushingfeels, disability, dismal, distressed, disturbed, drained, drowningfeels, exhaustion, fatigue, Fibromyalgia, Fibroplegia, headache, healthcare, helplessness, Hemiplegia Attack, Hemiplegic Migraine, Illness & Depression, imprisonedfeels, Isobars / Air-Pressure, mobility problems, morphine, overwhelmed, pain, painkillers, painsomnia, Ramblings, sensoryoverload, spasms, stress, stressed, tmi, uncomfortable, upset, weather, Weather/Isobars

[So] after Suffering Awful Nightmares through the night, I've then been Grinding my Teeth SO HARD, meaning that now -- the Right Side of my Jaw is ABSOLUTLY KILLING ME... I think it's entirely DISTRUPTED the Neuropathy in there -- So It UTTERLY, OVERWHELMINGLY, DEVESTATINGLY HURTS It's AGONY... ... I'm also starting to Get Concerned & wonder if those Nerves are being DAMAGED IRREPRABLY from it happening REALLY FREQUENTLY again...  I was SO Exhausted last night, I Wiped OUT at 12:30am -- This was after Three Days Straight of Zero Sleep Throughout The Entire Night. That's what you get when Weird-Ass Weather, Stress & High Anxiety (especially the weather at this point) comes & Kicks You All The Way Down The Huge Mountain of Horrible You Are On... Otherwise Known As A Fibro-FlareUp & The Consequences Thereof.

Incontinence Interference

Posted on by delphinemusic in aggitated, anguish, anxiety, badthings, catheter, chronic illness, Chronic Pain, Chronic Paraesthesia, concerned, confused, CPTSD, despairing, devestated, Diagnostics, disability, dismal, distressed, disturbed, fatigue, feelsick, Fibromyalgia, Fibroplegia, frustration, grief, healthcare, helplessness, Hemiplegic Migraine, Illness & Depression, imprisonedfeels, independence, Mental Health, mentalhealth, miserable, mixedfeels, numbness, overwhelmed, personalinsights, PTSD, ptsd, Resentment, sad, scared, selfawareness, spasms, stress, stressed, suffocatingfeels, suprapubic catheter, terrified, trauma, trauma, Treatments, uncertainty, uncomfortable, upset, vibratingscared

Being Incontinent... Is Not An Easy Thing To Deal With. You Certainly Do Not Expect To Need Anything Before You're Even 40.... I mean — Basically, from the day you’re Successfully potty-trained in infancy, you definitely do NOT expect to be Back in Nappies by the time you're... 35.

BETRAYED — BY CORONAVIRUS & NHS

Posted on by delphinemusic in aggitated, Alexithymia, angry, anguish, anxiety, ASD, asd, Asperger, catheter, chronic illness, Chronic Pain, Chronic Paraesthesia, concerned, confused, CPTSD, crushingfeels, despairing, disassociation, distressed, disturbed, dragondisappointment, drained, drowningfeels, exasperation, exhaustion, Fibromyalgia, Fibroplegia, frustration, furious, grief, healthcare, helplessness, Hemiplegic Migraine, hospital, Illness & Depression, imprisonedfeels, lost, Mental Health, mentalhealth, miserable, overwhelmed, panic, PTSD, Resentment, stress, stressed, suffocatingfeels, suprapubic catheter, terrified, trauma, trauma, uncertainty, upset, vibratingscared

I go through this Crap-Ass Existence in as much silence as possible these days... It’s easier, because writing about it requires Processing that I cannot manage anymore — a fact which hurts me and depresses me, because I’ve always used writing to deal with things my entire life... BUT this time, I feel things have … Continue reading BETRAYED — BY CORONAVIRUS & NHS →

Painsomnia

Posted on by delphinemusic in aggitated, Agony, Alexithymia, anguish, anxiety, ASD, Asperger, aspie, chaos, chronic illness, Chronic Pain, Chronic Paraesthesia, confused, despairing, dismal, exasperation, exhaustion, fatigue, Fibromyalgia, Fibroplegia, helplessness, Hemiplegic Migraine, imprisonedfeels, Isobars / Air-Pressure, lost, Mental Health, miserable, stress, stressed, upset, weather, Weather/Isobars

For days... weeks(?)... I’ve been unable to say words in writing. My head aches at the mere thought of making sense of my Feels enough to attach actual words to them...

A Different Physio Pain: When NTs Harm Without Consideration…

Posted on by delphinemusic in ASD, Asperger, chronic illness, Chronic Pain, Chronic Paraesthesia, disability, Fibromyalgia, Hemiplegic Migraine, Illness & Depression, Isolation, Mental Health, mobility problems, stress

I went to physio. I wish I hadn't. Even though it was technically a "good session" — productive, challenging, effective... It was not a good experience.

Anniversary of Hell…

Posted on by delphinemusic in ASD, chronic illness, disability, Fibromyalgia, hospital, Illness & Depression, Isolation, Mental Health, Ramblings, stress

Tomorrow is the anniversary of when I first was taken into hospital... On the 28th January 2018, I was booked into the Premier Inn at Skelmersdale, to go to my niece's christening the next day. I ended up in hospital for six weeks instead...

Dear Chronic Illness/ Pain/Conditions Sufferer…

Posted on by delphinemusic in ASD, Asperger, asthma, chronic illness, Chronic Pain, Chronic Paraesthesia, disability, Eating Disorders, Fibromyalgia, Hemiplegic Migraine, Illness & Depression, Isolation, Mental Health, mobility problems, Treatments

A Message For Anyone Who Is Suffering With Chronic Illness/Pain/Conditions... Especially Those Facing This (whether literally or emotionally) Alone...

Anxiety & Chaos — The Antithesis of the Aspie Mind…

Posted on by delphinemusic in ASD, Asperger, chronic illness, disability, Fibromyalgia, Illness & Depression, Isolation, Mental Health, mobility problems, Ramblings

Anxiety and Chaos rules my mind. It feels like it's been long buried under mountains of agonising pain, sorrow, grief. Fibro-Fog, medication, and more and more Chaos and Anxiety. I can feel my mind still there, calling, struggling to be freed, to be heard... yet, there seems to be so little I can do about digging it back out.