Tag Archives: ASD

Painsomnia

 | 15°C

Painsomnia… Aptly-Named...

 

For days… weeks(?)… I’ve been unable to say words in writing. My head aches at the mere thought of making sense of my Feels enough to attach actual words to them… 

Dailyos haven’t been filled in (will have to do them retrospectively… Somehow… Using this log…). Even this Journey Journal hasn’t been used for anything much more than a LogBook. 

I’ve found this to be a Notably Reliable Indicator of Depression. Not the bad kind… No. The Really, Really, Badly Fucked Up Kind.


What’s been happening over the past few weeks, along with the God-Awful bitter hopelessness of recent times, is ensuring my brain is being cemented into the Wonderland of my Mind… And it seems I am, once again, being packed up and flung down that Rabbit Hole, ready to be destroyed and torn to pieces all over again. 

Chaos. Fatigue. Exhaustion. Grief. Confusion. The inability to process complicated Emotional Feels. Not enough time to process Complex Emotional Feels. It all just builds up and up and up, until I’m so completely and entirely overwhelmed…

I am done in… Distressed. Frustrated. Overwhelmed. Frightened. Anxious. Wound Up. Agitated. 

I fear sleeping again. I’m not even sure if I know why…

I am am in such a physical mess… And not just the Fibro. Not being able to wash my body, or my hair, or engage in any proper self-care at all is heartbreaking. But it also has an actual knock-on affect in so many other ways, too. You cannwot get properly cleaned with wet wipes. You don’t get properly washed to prevent catheter infections. Taking all your clothes off properly means that heat rash, allergens, creams and oils, groom and backside areas get properly washed, rinsed and sluiced. 

I need to get some kind of grip on it… Quickly. Before it become next to impossible to wrangle The Beast back without an all-out war…

#anxiety #anguish #asd #aggitatedPowered by Journey Diary.

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Surviving Trauma with ASD

My Story… My Life…

The Second Time My World Imploded into PTSD…

When I was 34, literally my entire world fell apart. I was so ill I couldn’t move and was in 24/7 agony from Fibromyalgia, and after 2 years of this illness and 10 years together, my partner snapped and she sent me home to live with my parents. Actually, she asked them to come and get me.

Just one random day. She stopped texting me. Then vanished. Never came home. I freaked the crap out. Turns out she went to her mums house. I had to track her down. And her step dad was a bitch to me on the phone.

Then she told me everything was done, we were done, and she wasn’t coming back until, I was packed up and ready to go.

My. World. Died. And. Ended. In. That. Moment.

She took the last remnants of things I had left — and I had already lost the career I loved and the data migration project I was just about to start. And destroyed them. Just one random day. Just like that.

It was nearly 4 years ago, this November it will be.

It was utterly sheer hell. I didn’t know if or how I was ever going to survive. I was delirious with agony and pain, screaming and blacking out from it every day, my parents were yelling at me, screaming at me, doing other bad things at me. I had several meltdowns per day. Everyday. The worst ever kinds. I used to come round to disaster and injuries I had no idea about constantly. It was horrendous…

It went on for years… I tried to OD twice. Was in an ambulance for it. It was a waking nightmare of exceptional proportions.

I don’t know how or why I am still here… But I am. And, frankly, I’m proud of myself for that.

And I survived long enough to get a very special person back in my life. And it’s in a better way this time too …. 🤔

So… I get it. I truly undoubtedly do.

And, also, that is how I know that others can survive this. Because I have, I do. We do. Cos we’re strong and kick ass and have to take far more than anyone could ever frikkin imagine. All. Day. Every. Day.

💖💖💖💖💖💖💖💖💖💖💖💖
💝💝💝💝💝💝💝💝💝💝💝💝💝


JUNE 2019 — Daily Mood Chart • Disturbingly Not Good… 😔

I use Dailyo diary and mood tracking app for this:

https://www.daylio.net

This just about says it all… 😞😖😢

When you are going through it, it’s bad enough… But to see it like this… You really do get to see “in black and white” as it were…

It was terrible to go through. It was a Hellish Month! 😰😖 … I hope that this next month will be at least somewhat better.

I’m not holding my breath or anything, though… 🥺😞


TMI

| 9°C |

Overwhelmed. TMI’d up to the hilt. My Mind has been blown to pieces… and then those pieces have been blown up too.

I can’t even… You know, I am buzzing on the inside… I mean literally, like every cell has its own TENS machine or Thumper Wand.

Too much everything. There’s no time to think. No time to wind down. There’s no time to Sleep – and they come with Nightmares anyways.

I’m blacking out – because All of This is just Too Damned Much. I am dying inside. I don’t want to know about any of this. The Pain is Ridiculous. The Emotional Turmoil is Overwhelming and Pathetic.

I need Space. Headspace. Peace – from the Chaos, the noise, the constant haranguing. Something always has to be done. Or noted. Or talked about. There’s always a Ping. There is always someone talking. Then there’s people walking in and out of my room, as they please, talking about stuff they could message me with.

Things keep happening and going very, very wrong… A continuous chaotic cacophony of Mind-Blowing, Brain-Breaking Stress, that just seems to never, ever end

Nothing goes right. Nothing goes easy. Nothing I do is *enough. And worse of all, is that I can’t stop other people from messing with my head, giving me Meltdowns, frightening me, Badly Shocking me, or breaking The Rules and Harming MeDestructive, Harmful, Destroying.

I haven’t stopped. I’ve been going, going, going, and haven’t even barely taken a breath for myself… Everything takes time away from me. There is no rest. There is no peace to steal. There is no respite. There is no Mercy

The Agony… The abundance of TMI… It has me blacking out into hallucinating unconsciousness; one that is uncomfortable and frightening.

Physically, I can’t move. Breathing is difficult. I am “imprisoned” in my Room again. I am Resentful, Frustrated, Hateful, Forced into this… The Agony is Unbearable.

These Feels are… Heavy… And I don’t like them. I only want them to go away.

#pain #chaos #drowningfeels #sensoryoverload #agony #despairing #stressed #drained #dragondisappointment #anxiety #asd #tmi #fatigue #helplessness #aggitated #exasperation #exhaustion #frustration

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A Futile Fibro Flare-Up Day…

Temp| 8°C

Still can’t think beyond the pain. My brain is zoned out.

I’m in no shape of, or for, anything.

Done naught but a few words in Daylio and Jouney Journal, then blindly and mindlessly poking around the internet a little.

Somehow, it’s now 5:30pm. I have no idea how that could have happened. I wanted extra meds to help play Skyrim. Guess that didn’t work out.

It’s horrible outside. Cold, rainy, high Humidity. The isobars are decent-ish at 1016mb. I’m so cold… But I can’t move, and in too much pain to do anything about it… 😣🤕🤨🥺


There are a few emails on my system now that I haven’t read. Refused to read. There’s 2 about the Boots thing, 1 about the Ubisoft problem with Assassin’s CreedUnity (the downloads run at 3mb/s & then the game won’t load anyway), and 1 from Sophie the OT regarding people coming here to install my shower.

I’m too scared to read them. Or, more specifically, I’m way, way, way far too way into OTT & TMI to cope with facing them or processing them, let along answering them…😟😣😢

I don’t know where the “Me” who used to jump at all correspondence, had Zero outstanding emails in her inbox, is avoiding messages and has nearly 7,000 “unread” emails in her inbox 🤯😫😟… 💔

… I could really do with her right now… 



I’m in 9.95 Pain… I can’t think past it, or of anything else, and my mind is blanking to try and deal with it…

  • I’ve been rushing around checking into, and booking, Premier Inns…
  • Mentally preparing for the crapload of Appointments we have to deal with and somehow manage through in May, including 2 big hospital appointments far enough away to require overnight accommodation…
  • I’ve had to deal with the last minute Car Tax thing and go out to do it, causing this latest flare up of agony (because I don’t have a shower)…
  • My glasses got snapped in half, and I had to circumvent my immense panic and Dragon of Disappointment long enough to get new ones.
  • I’ve had a good couple of mini-ish Meltdowns caused by other people…
  • My Catheter came out after only 6 days, and at 10:22pm, of all times… Late at night is *never* good; at least the nurses are great 👍🏻 🙂🤕
  • I’m even more exhausted because my mattress was being mean to me, and causing several nights of extreme pain and nightmares.
  • I flipped the big Hypnos mattress with Dad, and had to empty and redo the bed with Sara.

 


There’s been too much stuff, way, way, way too fast. Too much pain. Too much chaos. Too much… everything-too-much-on-top-of-everything-else.


 

NB: I think the new Food Plan is going to have to go in the bin, for today. There’s no way I am eating between 6pm and 7pm when I am like this. I’ll need at least 6:30pm meds to have kicked in, as well as an extra mini-dose of Oramorph, to manage to eat anything.

Before 8pm, food has no  chance of happening. 😖🤕😣😔

 

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April 2019 — Dailyo Mood Chart Stats

I use this great diary & mood-tracking app… It was quite a good idea, actually, to help me with my ASD 🤔

https://www.daylio.net

Well, I’d probably say the graph says it all, how my last month went. Seeing it like this, though, is a bit of an eye opener. It’s really no wonder I am a mess, of this kind of emotional chaos is what I am living with… I think this was what I wanted and expected out of using Dailyo — but it’s rather different when it ’s actually there, right in front of you.


The only shame is you can’t sync it through different devices… that part is annoying, but the rest of if it is pretty great, actually… 🤔🤨😎


It’s disturbing how all-over-the-place the peaks are. It’s there, in front of you, undeniable. It wasn’t OK. It was Chaos, Brutal, Upsetting, Difficult, Emotionally Unstable… Destructively Unstable… I realise now how strong, stubborn, I’ve had to be, in the wake of that chaos… The reason I am so, so very Exhausted. Run-Down. Severely Hyper-Vigilant & Easily Startled. Anxious As Hell 24/7.

The last thing someone who craves… Needs… emotional stability, is this… I am ASD, with (probable) Alexithalmya. What I need is is for that to be solid in Green.

Green means Neutral. Not Happy. Not Sad. Not Scared. Not Angry. Not Anxious. Neutral. What I’m seeing is, quite frankly, the exact bloody Opposite!


I am aware there is no ideal, per-se… However, it cannot be too much to ask that it remain at least somewhat in the Green/Neutral area a little more than twice in one month…?!




The One With The Near-Meltdown, Dragon of Disappointment, and Too Many Feels…

Weather | 11°C


Complicated. So Much… Too Much… Feels… Too Many.

… All over the place


I don’t know what to do with them. They’re scary and confusing. I can’t even make sense out of, or even try to unravel, them…!


Nightmare day before it even starts. Managing to get to sleep (as in longer than 2 hour naps), on occasion, now, but dreams still come. Disturbing, or weird, or… unnerving ones. When Mam comes to wake me up, sometimes it’s a little bouncy for my sensibilities, and this was one of those times, unfortunately. I felt rather… rattled — but this is actually quite unusual for me. I don’t think I’ve reacted this badly for a while. I didn’t really do anything about it; I explained it to Mam — or tried to, at least. I don’t think I made much sense. This day was already off to a bad and complicated, confusing start.

Then the dogs were screeching everywhere, and no one downstairs was stopping the goddamned Wackadoos. Once again, I talked to Mam about it. But she got upset, and it all rather went south from there.

Mam came up, and when I tried to talk to her (apparently “in the wrong way”… 😕🤔😞 Which, for me, is unfortunately more common than I’d ever appreciate… 🤨😒), she started getting even worse with the defensive, the frustrations, and the squeaky “up tones”… which always makes me upended and upset, off any even-keel, and unable to cope. Adding that to the state I was already in before, and how I felt after this morning, and it was a nightmare waiting to happen inside my brain.

This escalated into a Meltdown Situation — just about managing to stay on the right side of sane(ish). One which I kept precariously balanced on the knife-edge of Full Blown Nuclear Volcano Meltdown, all furiously bubbling away inside me. It felt like a six-tonne boulder, that I could barely keep holding above my head. One that was threatening to fall onto my head. I was actually physically shaking from trying to keep it in check… It was agonisingly painful, both physically and emotionally/psychologically. I managed, sort-of. It stayed out of Meltdown Mode, remaining in the pending tray instead. Keeping a grip on it, keeping it up off me. I still don’t know how I succeeded.


To make matters worse, my friend S (kindly, compassionately, clearly, and “safely” … this girl should get a Bomb-Disposal medal for executing this so perfectly…!) informed me she had accidentally opened up an Amazon package that had been holding my precious birthday present — The SSD for my PC C-Drive upgrade, which has been put to one side, untouched and unopened, until such time I am ready to be able to upgrade said computer system.

… Now, I realise it should already have been done — going to Caernarfon was a big mistake, and I should have stayed home to do up my Baby. Now, he’s buried behind random stuff and mess, and I can’t get at him, to open him up and change the drives. Not only that, but because of what happened there on that “break” away, and how I am subsequently feeling because of it, I’m also in no psychological place to safely make the “brain transfer” that my Baby needs, between my original 120GB and the new 256GB SSDs.

Technically, that sanctity of that Gift has now been sacrificed after this mistake, and the packaging of the parcel is an opened mess… No More “Untouched and Unopened”… None of that for me now, for my Birthday Present from S… 🥺😫🤯😓😥 My First Birthday Present from S, with her being here with me. But, instead of being shocked or frightened by it, I am soothed and supported into hearing it and comforted whilst processing it.

This is my Friend, S

This might be the first time that something usually so… catastrophic… does not go off and explode like an IED in my head. I’m upset. I’m horrified. I’m Hugely under the shadow of the Dragon of Disappointment. It smacks me hard, and it’s pretty awful that this happened. However, as I explained, it brought the Dragon of Disappointment, yet gave it nowhere to land. There was no Valley of Terror, Panic, Shock, Trauma, etc, for it to land in. So, he’s kinda flying around there, half-heartedly, until such time he gets bored and buggers off again. And I am free to just ignore him, because — although he’s there — he’s not really doing anything, nor (more importantlyDestroying anything.

Finally… Somebody gets it — Nailed it. The fact niggles, but it’s more like a bored and petulant huff in the background that you can’t really take very seriously. I’ll take it.


#anxiety #helplessness #frustration #ptsd #trauma #despairing #dragondisappointment #alexithymia #exhaustion #pain #depression #asd #lost #fibromyalgia #paraesthesia #drowningfeelsPowered by Journey Diary.


“You Don’t Know What Damage You’ve Done…”

There Should Be No Shame…

But… There. Is. 

So. Much. Shame.

I can’t work. I can’t breathe. I cannot seem to stop it running around in my headDepression, Panic, Hopelessness, Despair… All claiming me. Claiming my attention. I cannot relax. I can’t even take a deep breath — both literally and figuratively.

This idea has burned up my brainShaking, Shaken, Shame, Horror, Sickened Disappointment, all running rampant, until now I can barely move, I’m so frightened.

I read today on Twitter one single Tweet that stuck in my mind, saying:

 
If you’re living with this illness and functioning at all it’s something to be proud of, not ashamed of.
 

Carrie Fisher

This is what she has taken away from me. That physiotherapist.

Every Hacker, even every kind of Fighter, knows it takes one tiny flaw, one minuscule hole or weakness in the armour, and you can wriggle in and destroy what you’re going after. My armour was nowhere near strong enough to take this. It was new, vulnerable, still setting in its place. I am not sure if I ever even had a glimmer of a chance to survive such an onslaught of horrific demons and emotions from that one simple curse laid upon me.

My mind feels… Dead. Hopeless.

I’ve been trying to play Skyrim. No avail. Between my head’s cacophony of daemons, and the dogs’ constant barking (which dad ignores until I yell at him over text to fix), I’m in Emotional Hell. With Alexithymia and ASD. Meaning, I got no way in all hell’s universes of getting through this or managing this alone.

The constant barking screams it all home — if I was OK, if I wasn’t trapped here, if my legs workedthey wouldn’t be barking. I’d be there, telling them what to do until they figured out it wasn’t in their best interests not to make a peep. Dogs hate lectures. A lot. They love huggles and praises. So, it works like a charm to lecture their ears off, and they really think hard before doing it again. (Go on try it…!)

QueueHatred, Resentment, and Breaking Inside Till I Shatter & Die. Because I am not a good Mother. I am not a Good “Dog Owner” (hate the term). I am letting my babies down by not being there enough for them. All of this right now, once again, just Feels Wrong.

Not “OK”, like it did before. Like I fought so hard to feel. No. The horror inside I endured for nearly 5 years is back again, and doesn’t seem to anything but cruelly relentless and suffocatingly strong.

 
Utter Shame. Overwhelming Resentment. Clawing & Churning Despair Inside. Extreme Self-Hatred. Suffocating Feelings of Pointless & Being Troublesome. Disturbing Thoughts of Death.
 

I got them all to go away. I chased them out… But they apparently only got as far as a holding pen outside of my consciousness. And a fickle one at that. Now Queue Dragon of Disappointment to come and join in, and sit on my head again. All having a party in my brain, destroying it like it is a hotel room and it’s the band’s last night.

I’m trapped inside it, being tormented by it all. Imprisoned in my head, as well as everywhere else.

I’ve done this. I’ve done this before, and I’ve gotten away. I’ve done this before… so, so many times

… So, why do I have to go it again…?

#depression #quote #drowningfeels #suffocatingfeels #trauma #ptsd #imprisonedfeels #fibroplegia #lost #fibromyalgia #dragondisappointment #despairing

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