Tag Archives: Hypnos mattress

Catheter Chaos • Boots Discrimination Discomfort…

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The Catheter just came out again…

It lasted only 6 Days, this time… 😳😔☹️

It’s so annoying, having to undo all the straps and sort through all the tubing, and whatnots, when disposing of a shoved-out Catheter.

Then there’s the Dragon of Disappointment, and all the other damn “emotions” and crushing, suffocating “feels” that go with it.

Certainly makes me more determined to get a good meeting out of the Suprapubic Pre-Op Hospital Appt. next week

Catheter tubing, leg bag & Night Bag
The Reality of the Indwelling Catheter

I really feel… horrible… Betrayed, almost, by the damned thing. Strange, but true!I thought I could at least make it through another month, but apparently not. My stomach is all knotted… I feel something… crushing, twisting, fiery, scratchy, bitter… upset…😢

I am not in the right space for this to happen along with everything else… 😖😖😖

I was miserable enough without this…


It’s been spasming all day. No doubt due to all the stress I’ve been under. Or… maybe more like I put me under… 🤨🤔… 😒😒😒

Between fearing the arduous and overwhelmed task of flipping the mattress, and the issues I’m having, now I’m arguing with Boots about whether or not people in wheelchairs should be treated better than naughty puppies, I’ve been in a lot of depressive misery today.

Boots made me feel small, pointless, miserable, undignified, insulted, belittled… Vulnerable… I’ve been in scared and sorrowful misery all day.

But then I got some balls and got going with sorting out the mattress, because there was No Way I was sounding another night like I had been, in that much pain. I’d had enough painful nights and nightmares, and last night was the final straw.


But I guess it was too little, too late, and the stress of all of it was too much…?

Either way… The bastard thing is out again. 😒😒😒😒😒😒

Catheter tubing & Night Bag
This is what it should be doing… As opposed to shoving itself out of me…🤨😒

#upset #frustration #fatigue #exhaustion #fibroplegia #dragondisappointment #irritated #sad #pain #dignity #suffocatingfeels #catheter #fibromyalgia #anxiety #aspie #healthcare #alexithymia #stressed #dismal #depression #resentment #helplessness #disabilityPowered by Journey Diary.

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New Accessories…

So, I got a catheter. It’s been three days so far – well, two and a half really – it was put late Monday afternoon and its technically 4:30am Thursday morning. The struggle to get to and from the bathroom was getting ridiculous, and the final straw was when I passed out for six hours straight in there when I tried to go, last week – then ending up with a complete memory block for the entire day: All I know about it s whatever I have been told.

My mother called up the next day and told them it couldn’t wait any longer, so they put me on the list for this past Monday.

It was scary, and uncomfortable…  but ironically, the worst bit was having the numbing gel put on – my paraesthesia did not like that at all… The procedure itself was over with before I realised – and I suspect it would be easier to have it without the Lidocaine. The procedure must be done every three months, so the best way needs to be figured out, if I must endure it four times per year.

It’s more than worth it, however. Already, there is a difference with nausea and bloating pain levels, other pain levels, and I’ve been able to play games and physically relax a little because the agony and exhaustion of going to the bathroom has been eliminated. I’ve not had half as much alcohol because there’s less paraesthesia pain due to less movement and exhaustion. After being quite badly dehydrated for years, forced into ignoring thirst and almost never drinking, puffy with water retention and with very dry and cracked lips, I’ve been drinking all the juice and water I can, and taking holistic water retention tablets, which are great and work a treat (and arguably too well, since I have to drain the bag an awful lot!). I feel amazingly better, lighter (like someone took away some of the cement living inside me) and I no longer feel bloated and pregnant with quadruplets. I can even straighten my back a little again.

Turns out long-term dehydration and water-retention isn’t very good for you at all…

Also – well, later on today, I suppose – I’ll be receiving a new Hypnos mattress (the same as they have in the Premier Inn rooms that have been helping deal with a lot of my pain), which will hopefully allow me to bring my pain levels down enough to make it more manageable (i.e. under 10) and thus allow me to take a break from the rather icky grape juice and Courvoisier. I hope it might help with the Fatigue, too, even if its just a little. It should be coming sometime between 11am and 3pm, and the room has to be organised so the mattress can get in (it’s pretty big).

I would like to hope it’s the advent of starting to regain some control over this, even for a short while. Historically, that just never happens – it all goes horribly wrong right after… so, I’m just going to just have to see how this one plays
out…

I Need Coffee


 


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