Tag Archives: back pain

The Painful Truth…

 

Living with chronic pain is, to say the least, a right pain. It restricts what you can do, and in most cases you end up being reliant (at the very least) on strong painkillers to get through the most basic of tasks and the quietest of days – doing any more than that can require a huge amount of willpower and gritting of teeth, followed by pure exhaustion.

 

Personally, I am really tired of being in constant pain and having to treat my body like it’s made of bone China. There is barely anything that doesn’t hurt every second of every day, and even a slight pressure can cause a lot of pain which can border on agony if it’s already flared and sensitive. I’m tired of being always tired – from the effort of just living, I’m perpetually exhausted. My mind has to be continuously active in blocking out as much of the pain as is possible, and this drains me. I used to rely on painkillers until I became addicted to codeine – now I have mastered that, I try to stay away from them as much as possible and try to manage my pain by shutting it out of my mind, or just gritting my teeth and trying not to cry. Only when it becomes too much to bear do I end up turning back to the pills, and I control my consumption of them with an even firmer iron fist than I do the pain itself.

 

I must admit that I believe a life without it would not be my own – it would be unrecognisable as a life of mine, having dealt with this for most of my existence. I’ve had it for so long I would not recognise my life without it, and would take a lot of adjusting – not that I wouldn’t take that option in an instant if it were offered. I have incorporated it into my life and tried to work around it as much as possible, but this has been unfortunately to the detriment of other things – like fun activities. I loved yoga, horse-riding, walking – these are no longer a part of my life, except for a small amount of walking (and by “walking”, I mean long walks or treks in nice places, not walking to the shop…). My job is now working within IT and sitting at a desk – standing and walking for hours hasn’t been an option for several years, and I could never successfully do such jobs again.

 

In my darker moments I resent the hell out of this semi-prison I am in. I feel so restricted in so many areas of life, and I hate having to think twice before doing anything, and I have heartbroken hatred towards my body for keeping me confined in pain. When a light hit, or even a touch can leave me squealing and in tears, it drives home how much I hate what it puts me through. My bones, my back, my stomach, my legs, my shoulders, my head, my neck… There’s hardly an area that does not cause me endless pain day after day. Nothing but strong-ish painkillers can give me any relief – and even then it’s not enough to be pain-free… It just dulls it enough so I don’t want to cry from it. The real gem is that I can’t even take anti-inflammatory pills because thanks to a blood-clotting condition NSAIDs are out of the question.

 

In my more dramatic moments I feel cursed, angry and frustrated. The stress of having to cope with the unrelenting pain, as well as trying to focus on doing at least some daily tasks, and my job, plays havoc with my already disastrous and unstable mental health – which then also inflicts more exhaustion on my already-struggling body. This then causes more pain, as my body is made even more hyper-sensitive with tense muscles, tension headaches (or worse – full-blown migraines), and adrenaline hormones surging permanently through my bloodstream. To say that sometimes I really struggle to cope is an understatement.

 

Just a day, or a week, off would be lovely. To have a small amount of time that was pain (and painkiller) free would be a real treat. A restful night, followed by being able to get out of bed without at least wincing, and to be able to move around and do basic things without being reduced to frustrated tears or just plain not being able to move would be pretty awesome. It would be great to be able to sit at my desk without feeling horribly uncomfortable (instead of trying hard to concentrate on work whilst trying to ignore the pain shooting through abdomen, back, legs, and head), or play my beloved videogames without having to have giant cushions placed on the floor just so, to support my hips, back and legs (sitting any other way results in pure agony after just a few minutes).

 

Unfortunately, until real-life starts inventing real Fairy Godmothers with real Magic Wands, I am stuck with grimace-and-bare-it – and what will probably be a lifelong requirement for codeine consumption. Yesterday it was so bad, I bought Syndol – which has a tranquiliser that works as a muscle-relaxant. I had to drink coffee like it was going out of fashion to stay awake, but I was pretty pain-free (and rather out of it) for most of the day… Thank goodness nobody takes much notice at me, hiding behind my screens, at work!

 

Right now, at this moment, the pain is bad – the codeine has run out and my head is overwhelmed by the pain data flooding in from just about every part of my being, especially my back, hips and legs. It does make me want to cry (sorry to be all morose and all that…) – and I do try to cope by turning up the volume on my headphones (thank the lord in the rather insular world of IT world it’s a fairly normal practice to stuff music in your ears and concentrate on your work) and drowning out the “noise” that the horrible pain makes.

 

Eventually, I’ll give into it and pop another two pills – careful not to slip into dosing way above the recommended limit, like I used to. After the splurge of “celebrity” deaths following overdoing the painkiller addiction until you officially overdose, I have become very relieved that I have survived doing exactly the same thing myself, with no long-term damage done. It’s too easy to do – I know that as well as the next person doing it – so I am hyper-vigilant about it now.

 

Like everyone else in similar situations, it’s really just all about the bottom-line… You just want the pain to go away…

 

 

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Living With The Enemy

Not been doing much writing of late… I’ve barely just been mindlessly going back and forth on the manuscript without much of an idea of what I’m doing. I wish it was because I have started an intensive IT course for SQL, but even that is suffering.

 

After all these years I am definitely tired of being “symptomatic”, but right now I can just about claim to be “coping” … And by “coping” I generally mean that I haven’t as yet curled up into a catatonic ball for six months. I feel a bit “Can’t Live If Living Is Without You” when it comes to my (… “condition”?… “illness?”) depression – I’ve had it nearly all of my life and I don’t think that I would know what to do without it hovering there in the background. But that is where I would prefer it to stay. Whenever it raises its ugly little head in my life, everything tends to descend into chaos, leaving me a quivering wreck that then has to pick up whatever pieces that are left at the end of it.

 

Being out of work (it’s like no matter how hard I’ve tried, I get nowhere…) and stuck at home, it’s not the best situation to be in – it’s prime fertilisation for a relapse. Add to that horribly painful backache and sciatica (ironically brought on by sitting for long ours in the classroom every week for SQL course to get me back into work), making walking – and just about anything – difficult and painful as hell, and all that’s left is a rather miserable Lel… Even my “Angel Walk” – walking from home to Angel Islington – that I try to do most days ends up compromised when it flares up, and there goes the one thing that makes me feel a little better.

 

I’m tired of being tired… No, exhausted… I’m tired of being up till 4am every night – despite being so damn knackered, I can’t concentrate on anything, I feel rubbish enough to not even know what “self-belief” even is in theory, and I’m so run down with almost no appetite and no particular inclination to consume anything but coffee, as it’s the only thing that keeps me vaguely functioning. I’m also ending up having to take painkillers rather regularly again thanks to my back, and that’s the last thing I need to be reliant on when I’m feeling not OK with things. I have enough of a checkered past with codeine – the last thing I need is for it to raise its ugly head on top of everything else.

 

I also hate being hopelessly over-emotional, prone to unbelievable levels of hypersensitivity and emotionally-driven panic attacks, and I tend to stupidly believe that the pills can help can calm them down because they make me think I feel better. You’d think that after 20 years of this I’d have worked out that it does nothing but cause trouble, not make things better…

 

I really want to get back to “normal” (normal for me)… To be more than just about functioning, just about coping. I want to be able to walk out the house and not feel scared (agoraphobia can be really annoying), talk to people without feeling like they’re being really demeaning towards me (it’s just paranoia – they’re generally not), talk to agencies and go to interviews and sound coherent and confident whilst doing so. It’s always nice when these things happen, and I can do them all without having a panic attack or descending into paranoid tears.

 

Actually, what I would really like is to get my mind back so I can concentrate on things again, get obsessed/ passionate (depends who you ask…) about the things I love, get back to writing, actually enjoy my course and be able to do concentrate on it and actually understand it, actually want to play games again… I miss caring about my characters (in my novels, Skyrim, Fable), and I’m annoyed I’m not making the best out of my course that cost a lot of money. Not being able to take in the lectures and trying to read my notes and textbook with the words never being retained.

 

The demon needs to go back in the box… A bit tired of playing games with it though.

 

 

 

 


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