Category Archives: Treatments

Saved By Tea….

Yes. Literally.

But not that nasty plain black tea. Pukka tea. The ingredients in it are so potent and effective, it eased what was a nightmare of a massive spasm attack that just would not go away, no matter what I did.

I went into a mass of unrelenting horrible spasms for hours and in desperation I had one of their teas – Lemon, Ginger & Manuka Honey: Ginger root with licorice root, eldferflower, fennel seed, tumeric, verbena, and of course lemon and honey, because ginger was a key anti-spasmodic in my massage oils. I was so exhausted and in so much pain from them it was a Hail-Mary – and then Mary really came through…

Within half a cup the horrific spasms I’d been having for hours diminished. I was able to relax(ish), breathe, be [my] normal again. It was amazing… and it stayed away. I topped it up later with Serene Jasmine Green tea and was able to play more of my game than I had in a long time.

I’m still astounded and relieved that there’s so much good stuff put into that Pukka that it knocked the spasms sideways and they didn’t come back – nothing has done that before. It certainly wasn’t doing it with anything else, and I was trying everything, but they relentless, agonising, contorting, and I could barely breathe because they were constricting my ribcage and diaphragm too. Then I managed to get just half of the tea down me and there was just a complete 180 on the symptoms they finally relented – truly amazing.

img_0886Today (as in the next day) I’ve used Ginseng Matcha Green tea and then the Ginger one a bit later to see how that deals with my symptoms. The Ginseng Matcha is to substitute for my second coffee of the day and it’s given me a clearer head, helped with focus, and seemed to have allowed me to eat something, which isn’t normal for this time of day. They’re not quite to my taste, since I really dislike ginger… but if it can do that, I’ll drink anything.

I still can’t get my head around the fact a cup of tea can do that… but then again, why should it not? Way back in the day, it used to be normal – before “Western medicine”, all “old” medicine was just that – flowers, foods, whatever, boiled into easily-drunk teas, oils, “potions”, etc. Ayurvedic medicine is overlooked too much in favour of “Western Science”, which is a terrible tragedy. It should at least be a option, and still probably cheaper than what the NHS pays for all these terrible chemical pills the pharmacies make and overcharge for. It may not be for everyone, but then neither is all the Western chemical pharmacy drugs…

I can’t imagine there aren’t other people around that are like me – allergic, hyper-sensitive, or [effectively] contraindicates almost all drugs for one reason or another. I’m intolerant or allergic to almost all drugs it seems – I can hardly take anything without becoming terribly ill, far more so than I am without it. As bad as things are, they’d be so much worse if I took everything the docs wanted to give me. Instead, it would have been a lot nicer if they could have sent me to see someone who was an Ayurvedic practitioner, or at least a prescription voucher for Pukka/Holland & Barrett/Whole Foods… Then I’d probably would have felt a lot better a lot sooner.

For me, this has been an eye-opener in what I should be doing and consuming to help myself. That I should concentrate more on the massage oil and aromatherapy recipes, on getting the right things inside me, whether through eating, through tea, through supplements (etc), through to presuming I can only help myself by relying solely on Courvoisier VSOP because there’s nothing else (and if I’m going to consume something that tastes like evil, it should have more benefits than simply turning my brain off and threatening eventual jaundice…).

 

 

 

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Oh, Stella…

Storm Stella… Thank you for being yet another terrible import from America. For the last week or so you have been driving every nerve and cell in my entire being utterly bananas, and I’m in constant paraesthesia pain – I may as well be attached to Ol’ Sparky for the amount of electric shocks, buzzing tingles and burning, like sunburn, that I am currently having to ensure.

So thanks, ridiculously horrible storm that came from across the sea to cause so much misery.

It was supposed to be a good week this week, and especially today (it’s the release of Mass Effect: Andromeda [game]). But all this has made it impossible to manage to be anything close to even “Meh”. Definitely not “OK”.

It’s beyond trying, being dictated to by not only this condition but also the bloody weather. It’s even messing with my von Willebrand’s – and I have no idea how that happens. I’m already restricted by the damn condition, I really don’t need any more trouble because the atmospheric pressure has gone ga-ga…

IMG_1533I’ve been knocked off my feet and trying very hard to be Que Sera about it all… but this comes on the tail of a stressful couple of weeks, including being ill with flu for about two weeks as well. Then just as I was starting to get better, Stella came… and now I’ve got yet another flare-up from Hell again.

I’m keeping it from getting too much worse with the essential oil blend and Magnesium Oil. But there’s only so much even they can do in this situation. The paraesthesia has gone mad and there seems to be no stopping all those damn horrible symptoms that comes with it.

I was hoping that things would be back to normal by now. I wanted to play Mass Effect: Andromeda on Day One and enjoy it. I wanted to make it to an appointment to help teach someone about basic tech skills tomorrow. But no. It’s not happening. Instead I get self-consciousness, zombie-ness (and I’m not even Walking Dead… more Sitting Down Whilst I Rest Dead…), terrible sensations of being burnt and electrocuted, my hands don’t work properly (typing this is a nightmare for my fingers, but longhand is even worse), and I’m not sure how on earth I’m going to be able to focus on my new game and the lovely Collector’s Edition Guide to go with it. And I’ve been looking forward to this for years.

I am exhausted… so much so it’s more akin to being drugged with drowsy pills, which is really not easy to handle. It often makes my grumpy and without patience. I’m trying, but I don’t know how long it will take before I can’t take it anymore and snap… although I obviously hope I do not. I did not get any sleep last night because this morning there was going to be no one here to help me take my medication, and because of the weather I knew I wasn’t going to manage it alone if I had slept, so I stayed up the entire night to ensure I took it properly and on time. Afterwards, I passed out in my Aspie tent for about 2 hours, then I was up again. I was hoping to play my game. Despite it being there, in front of me, after my father brought up the packages that had come in the post (when he finally returned and I was cat-napping), I had to be disappointed in realising I wasn’t anywhere near up to doing much of everything, as the exhaustion and paraesthesia pain and intense sensations caused by the air pressure once again created an existence I could barely even exist in. Let alone play my new game.

It’s one thing when you’re in control of your health, your recovery or stability of your condition… but when something comes along and can dictate so absolutely what happens to you and inflict so much upon you, it’s hard to process that. It’s impossible to manage to control it. You can’t “get over it” or undo it, and the likelihood is that – after the awful and super-debilitating flare-up is finally done with half-killing you – you are then left to deal with the aftermath and recovery from it.

The constant storms of 2015/16 were so constant, it’s taken me nearly 10 months to start a true recovery (of sorts, relatively speaking) from it… then just when I think it’s safe to go back into the water … always something like this happens. Illness, weather, air pressure… something always seems to turn up. The bottom line it that you feel like you’re simply never in control of your life, condition, or health, and so end up feeling so hopeless and despondent.

It’s also the last thing you need when you’ve got an ASD brain… The random inconsistency, the lack of control, never able to plan anything, and everything constantly in flux even minute to minute, let alone any longer… It’s all a nightmare that never ends, and the only thing possible is learn how to live like that. Somehow find some consistency in non-consistency and non-complacence in how your condition or “triggers” behaves.

The only thing I can think of to cope with all this now (and it’s taken long enough), is to find a bunch of “safe” things that are always consistent despite the inconsistency in everything. More like “If-Then” kind of scenarios, and enough of them to cover as many eventual possibilities as possible – then there’s a constant stream of consistencies to find comfort and familiarity in – frankly, comfort and familiarity I simply used to get just by being in London (at home, my home). Because nothing makes much sense here at all, I need quite a few different “safe” things to have available, regardless of the situation.

Right now, all I want is for these symptoms to go away, my fickle concentration to return, to be at least almost entirely conscious, and to be able to play my game. I have a simple life with simple requirements these days… Something like that shouldn’t be too difficult to ask for – surely?

 


Alternative Thinking…

“Alternative” medicine is all I have left to use now – anything synthetically grown in a pharmaceutical lab generally does not agree with me (with severe side effects)

The latest attempt at some relief from this neuropathological crazy is CBD, or Hemp oil (aka “legal” type of cannabioid). It tastes of pure evil, but it’s early days so far. I’d like to think there’s a different, but it’s too early to really tell.

The essential oils recipe I have now is pretty fantastc – and including basil, Wintergreen, white camphor, juniper, and frankincense are all very important, key ingredients to making it work… the Wintergreen and Frankincense especially so. All put in pure Coconut Oil (but sweet almond and jojoba oils are also really good too) to be massaged in at least twice a day.

Another really helpful thing has been Magnesium Oil [spray], which helps dissipate the spassms and relaxes the muscles around the neck, shoulders, and shoulderblades to help prevent them – or at least the worst of them. Little ones get through.

This is obviously a very expensive treatment plan. They’re all very expensive products, and when added together is a rediculous amount of money… it makes you realise how it must feel to try and scrape together your healthcare treatments in the US and how lucky we are to have access tot he NHS.

Unfortunately, the NHS doens’t do natural products, and so I must use a hell of a lot of my pittance from PIP to pay for all this. If the government thinks what pittance pocketmoney they give is actually enough to pay for any of what ill/disabled people require to pay out for things they need, they’re completely delusional in the most rediculous way. Presumably they also believe in unicorns and see leprechauns, too… And they’ve clearly never been shopping for necessities to help with such situations and circumstances.

I’m relieved that there is at least something out there that helps. If I just relied on pharmaceutical meds, I’d be screwed. I can barely function on the Pregabalin, so there’s definitely no chance of going downhill from there on medication that’s supposed to help, but instead makes me sicker. Thankfully, Mother Nature got there first, and this Wiccan is used to looking elsewhere for answers rather than “modern” medicine.

 

 


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