Category Archives: Agony

The Shower Trauma

 | 14°C |

Eating Genius (GF) Blueberry muffin, pissed at the phones my poor best friend S currently has to put up with, wondering how long it’s going to take me to lose my rag with this UMIDIGI F1 that’s been somehow compromised… 

I had my shower. My body and mind feels better. It was difficult — I ended up in a rather bad sugar crash, and had to eat Toast, DF Cookies & Jacob’s Crackers. In the shower. It was Not Nice… 😖😞

When I got upstairs, I ended up fretting and being broken by the thought – the knowledge – that this didn’t have to have been like this for so goddamned long.

Afterwards, I also had to endure the inevitable subsequent Adrenaline push, making me quiver and shake as badly as the Sugar Low, Vexed & Anxiously Disgruntled by the time I got out and went upstairs.

Did you know that when I told Sophie that the Twat Fuckfaceheads that came to see me (Johanna & Donna – rat bastard C***s) had told me that if I decided I wanted to go on the list for a place of my own, that I could not have this place done up to be functional, she was astounded and told me it was UTTER BOLLOCKS…!! UTTER FUCKING BOLLOCKS!!

I hadn’t HAD to suffer! I hadn’t HAD to go through such Agony any Trauma as I had… and still had to.That this could all have been Avoided by someone who cared about taking pity on me and allowing me to have the shower room that I desperately needed so frikkin badly

I DIDN’T HAVE TO GO THROUGH ANY OF THIS AT ALL!!!!!!!

And what could I have DONE with access like this to a shower that would have cut my pain in HALF??!! The Escalation could have been STOPPED. Such ongoing TRAUMA & AGONY & HATE AVOIDED?????

HAVE I NOT BEEN THROUGH ENOUGH????? DID I REALLY NEED TO GO THROUGH EVEN MORE?????

NO MERCY!!!

NONE… AT. ALL.

I cried. Just a little bit. But. I. Cried. I never, ever cry (unless it’s Meltdown-Related). I do not cry when I am sad. This, though… This so Disgusted Me, Moved Me, Disturbed Me… I didn’t know what else my body could possibly do, when it did this…

… Inside, I am just Traumatised All Over Again. I honestly have another wave of PTSD about all of this, on top of, and Separate, from the rest. It makes me feel… Terror. Horror. Makes me want to physically vomit. The Fear. The Horror. The Sickening Suffering… 

I am DevastatedWrecked. Frustrated. Horrified. Traumatised. Destroyed. I could not describe it any more, or any better. These things are not easy to process in any way, shape, or form. 

Does anyone else feel sick now, too…?? 

Nearly Two Years – Two Frikkin Goddamned Years – Has Been Lost. I was 36 when the Occocuses Started. And I’m 38 1/2 when the Shower is Fitted. 

#dignity #agony #cellphones #crushingfeels #techspecs #disability #overwhelmed #drowningfeels #alexithymia #devestated #drained #dragondisappointment #food #occutherpist #miserable #phonetech #scared #tech #asd #headache #anxiety #exhaustion #anguish #paraesthesia #ptsd #eating #accessiblebathroom #confused #aggitated #ora #stressed #fatigue #despairing #hair #fibromyalgia #shower #angry #grief #painsomnia #phones #distressed #nhsdirect #showerchair #helplessnessPowered by Journey Diary.

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Overcast Clouds, 18°C

It hurts… It hurts a lot… Isobars have plummeted now — and the worst part is that they haven’t stopped falling… 🥺😣😔☹️

Painsommia…

I woke up at 8am to take pills, to give them to Lolli (Sara), and now I can’t go back to sleep because it sodding hurts too much…

It’s overwhelming, makes me feel nauseated in the pits of my stomach. Nerves and skin burning… Breathing is… Wrong…

Knee joints and pelvis area  are screaming… Head feels like the insides are being ground into mince, then scrambled up again… Ears are starting feel swelled and in pain… Nose is really killing me…

 

Every joint and muscle is screaming… 

Once again, it’s gone appalling …

There is no peace here I can feel… 

Just abject Misery. Again. Of course…

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Painsomnia

 | 15°C

Painsomnia… Aptly-Named...

 

For days… weeks(?)… I’ve been unable to say words in writing. My head aches at the mere thought of making sense of my Feels enough to attach actual words to them… 

Dailyos haven’t been filled in (will have to do them retrospectively… Somehow… Using this log…). Even this Journey Journal hasn’t been used for anything much more than a LogBook. 

I’ve found this to be a Notably Reliable Indicator of Depression. Not the bad kind… No. The Really, Really, Badly Fucked Up Kind.


What’s been happening over the past few weeks, along with the God-Awful bitter hopelessness of recent times, is ensuring my brain is being cemented into the Wonderland of my Mind… And it seems I am, once again, being packed up and flung down that Rabbit Hole, ready to be destroyed and torn to pieces all over again. 

Chaos. Fatigue. Exhaustion. Grief. Confusion. The inability to process complicated Emotional Feels. Not enough time to process Complex Emotional Feels. It all just builds up and up and up, until I’m so completely and entirely overwhelmed…

I am done in… Distressed. Frustrated. Overwhelmed. Frightened. Anxious. Wound Up. Agitated. 

I fear sleeping again. I’m not even sure if I know why…

I am am in such a physical mess… And not just the Fibro. Not being able to wash my body, or my hair, or engage in any proper self-care at all is heartbreaking. But it also has an actual knock-on affect in so many other ways, too. You cannwot get properly cleaned with wet wipes. You don’t get properly washed to prevent catheter infections. Taking all your clothes off properly means that heat rash, allergens, creams and oils, groom and backside areas get properly washed, rinsed and sluiced. 

I need to get some kind of grip on it… Quickly. Before it become next to impossible to wrangle The Beast back without an all-out war…

#anxiety #anguish #asd #aggitatedPowered by Journey Diary.


I not OK. *Got woken up by doggies barking wildly after terrible sleep & Nightmares*.

Few Clouds, 14°C

I not OK. Got woken up by doggies barking wildly after terrible sleep & Nightmares.

Feeling scared, vulnerable, dread. I don’t like any of this. This is how I felt when I had occocuses.

I miss my iPad. It was my friend. I talked to it, via this app or WordPress, or Dailyo. The Phone isn’t quite the same. That was Boo’s iPad. No other will be that. And now, I don’t even know what’s happening to it. Or what’s going to happen to it. I don’t like that either.

I’m in another Hell after yesterday. It was a big day and a long day. Now, I am suffering greatly for it, indeed… 😓😢🥺😖😳😟😣 I didn’t even get to have Squishes this morning, because Mam scared me. I got startled awake by the dogs, who kept on barking, an nobody was answering my Hangout texts. At least they answer the iMessages ones…

I got so scared, then the pain flared up into far too much, and then became No Touch. So, they threw that one out the window for me too… 🥺😖😟😣😢😢😢

So, now I hurt. In pain inside and out. My body and Feels really harming me 😢😢😢

My hand is irritating me now, too… (See pics). The feels are of burning and the scabs are flaking and are getting caught. I don’t want to take them off, in case I hurt myself without realising.

Also, the Right Shoulder is hurting me, and I’ve been scratching at it… Another one under way at all…? 🥺😟

Right now I am in agony and feeling Utterly Resentful at how much I am forced to rely on unreliable people for my basic needs and pain control. I am Vulnerable. Helpless. Reliant.

Needed Squishies from Mam and I got none.

Needed a shower yesterday to undo the pain I now have to endure instead, because no one has come to get me a usable shower yet.

There’s no Self Respect. No Dignity. There can be No Shame, otherwise you’die inside so very completely.

It takes nearly a day of morohine boosters to get me anywhere.

 

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TMI

| 9°C |

Overwhelmed. TMI’d up to the hilt. My Mind has been blown to pieces… and then those pieces have been blown up too.

I can’t even… You know, I am buzzing on the inside… I mean literally, like every cell has its own TENS machine or Thumper Wand.

Too much everything. There’s no time to think. No time to wind down. There’s no time to Sleep – and they come with Nightmares anyways.

I’m blacking out – because All of This is just Too Damned Much. I am dying inside. I don’t want to know about any of this. The Pain is Ridiculous. The Emotional Turmoil is Overwhelming and Pathetic.

I need Space. Headspace. Peace – from the Chaos, the noise, the constant haranguing. Something always has to be done. Or noted. Or talked about. There’s always a Ping. There is always someone talking. Then there’s people walking in and out of my room, as they please, talking about stuff they could message me with.

Things keep happening and going very, very wrong… A continuous chaotic cacophony of Mind-Blowing, Brain-Breaking Stress, that just seems to never, ever end

Nothing goes right. Nothing goes easy. Nothing I do is *enough. And worse of all, is that I can’t stop other people from messing with my head, giving me Meltdowns, frightening me, Badly Shocking me, or breaking The Rules and Harming MeDestructive, Harmful, Destroying.

I haven’t stopped. I’ve been going, going, going, and haven’t even barely taken a breath for myself… Everything takes time away from me. There is no rest. There is no peace to steal. There is no respite. There is no Mercy

The Agony… The abundance of TMI… It has me blacking out into hallucinating unconsciousness; one that is uncomfortable and frightening.

Physically, I can’t move. Breathing is difficult. I am “imprisoned” in my Room again. I am Resentful, Frustrated, Hateful, Forced into this… The Agony is Unbearable.

These Feels are… Heavy… And I don’t like them. I only want them to go away.

#pain #chaos #drowningfeels #sensoryoverload #agony #despairing #stressed #drained #dragondisappointment #anxiety #asd #tmi #fatigue #helplessness #aggitated #exasperation #exhaustion #frustration

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OTT TMI Overload & In The Black Hole of Pending Meltdowns…

Costa | 23°C

In Costa again… Oh, Frikkin Gods.. What a Morning… 😩😖🤯😣😱☹️ ‼️

 

I have been through the ringer… Drained of everything and more that I have, and have ever had, inside… I’ve been pushed beyond what I am really capable of coping with, dealing with, managing…

S pointed out that, Regardless, I am still managing it, because I am not actually having a Meltdown.

That’s… fair. I’m not. But it’s WW3 inside me and it’s suffocating me… 😖😣 … crushing me…


It started with sleeping in. Until nearly 1pm…! 🤬😱🤯🥺

After the last few days, and some careful planning of the day, that was so entirely unacceptable!! 🥺😖😖😖 Dear Gods, we were supposed to be in the shopping centre by then!

It destroyed my insides… Wrecked them apart and tore them, like an IED went off inside… This is was the Dragon of Disappointment going bananas inside me, and burning everything that I had inside. I was done

Somehow, S soothed me enough to help me wrap some kind of shell around the devastation, and allow me to at least try and function. Slowly, I got dressed and even managed a little makeup (even if it wasn’t exactly… great).`


However, it was late when we got out. Around 2:30pm. It was so hard for me to process this. My reasoning was, in the main, that the extra sleep — for me, at least, — was utterly pointless, and a complete waste of time.

To my horror, I had inadvertently squandered precious time outside, to sticking to a good plan for a nice and relaxing day outside — and instead spent extra hours in bed sleeping.

I have Fibromyalgia, and the symptoms that are the basic foundation of Chronic Fatigue — there is no way in hell that any of my sleep was going to be helpful, restful, recuperating, or healing. So, any “lie in” was a complete and utter waste of time.


This bugs me so much… I try to work so hard to master this damned curse inflicted upon my mind and body… and yet, still, it manages to somehow get the better of me, when I am at my weakest, to wreck havoc with my mind.

The Dragon of Disappointment is mercilessFear and Cold Terror turns everything white and frozenPanic and Horror make everything explode like devastating fireworks in an oil rig — leaving nothing in its wake but ashes and embers and ruins

It all makes my Aspic/Autie brain hurt. It goes into hyperdrive, and then destroys itself completely, and then everything else along with it.

It turns it into a blabbering mess; a pile of burned ash, slushed into a soggy mess in the torrential downpour of the storms that harm it so greatly… Until there is nothing left, and I am naught but a shell of emptiness and a robot in Shutdown.

It might be marginally better, and less destructive… but only on the outside and to other peopleBut it is still a horrific and destructive and Traumatic thing to endure, nevertheless.

It leaves its mark. It leaves it deeply — because it is not flung out into the Nether, like things are in a Meltdown. The Meltdown blows its top, and violently expels everything that you find within it that has hurt and harmed it so much, it has done this.

A Shutdown, however, Implodes, scarring everything inside, blowing everything on the inside, causing the devastation there instead. Arguably, to me and my mental health, it is worse. And even worse than that… Nobody can see it


 

I’ve done nothing to deserve all of this.

I’ve bent over backwards, and all ways, to try and be good, try and contain myself under extremely stressful and frightening circumstances.

And yet… More just keeps coming. 😖😖😖

I think I am aware now that it will probably Never End… But this Warrior is tired… Needs a little R&R from this… war of ill-health — of a broken body, a broken mind, and a broken spirit…

 

#scared #helplessness #angry #blackburn #irritated #premierinn #miserable #imprisonedfeels #furious #overwhelmed #trauma #alexithymia #dragondisappointment #exasperation #despairing #anxiety #panic #drowningfeels #fatigue #asd #confused #resentment #aggitated #dismal #caredfor #frustration #stressed #sara #exhaustion #upset #fibromyalgia #agony

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